On Tuesday Sept 2, 2014, a group of National Alliance on Mental
Illness, (NAMI) advocates from Kentucky’s district 6, met in Congressman Andy
Barr’s office in Lexington KY. We gathered to thank Congressman Barr for cosponsoring H.R. 3717 “The
Helping Families in Mental Health Crisis Act”.
In our meeting, Congressman Barr explained how earlier this year;
he had met with Congressman Tim
Murphy (PA-18), who sponsored H.R. 3717 learning first hand the
importance to this landmark bill.
Before Congressman Murphy sponsored HR 3717, between January
2013 and March of this year, the Subcommittee on Oversight and Investigations
held a dozen public forums and spent considerable hours determining how federal
dollars devoted to research and treatment into mental illness are being
prioritized and spent. This committee reviewed our ‘behavioral health’ system
and revealed: “a chaotic patchwork of antiquated programs and ineffective
policies across numerous agencies!”
Findings
of this Sub-Committee:
Federal
Government spends 125 billion on mental health!
Agencies
do not collect data on how $ spent or effectiveness.
Grants
and programs do not use the best available treatments and protocols.
Need
to integrate general healthcare with Mental Health treatment.
HIPAA
(Health Insurance Portability and Accountability Act) privacy rule consistently
creates barriers, especially for parents with young adults at home!
First
Responders, Paramedics and EMS workers are serving as MH social workers with little training on psychotic
breaks.
Department of Justice, (DOJ) does not track mental health of individuals involved in crimes or as victims of crimes. Prisons
have replaced psychiatric hospitals – 50- 64% of all inmates in prison have brain disease or serious mental illness, SMI.
Prisons have seemingly replaced mental hospitals for caring for the mentally ill. While there is no precise number on the number of mentally ill in prisons, estimates vary between 20 and 50 percent of all inmates.
Assisted
Outpatient Treatment (AOT) has been proven to reduce hospitalization,
homelessness, and violence.
Police officers are too often serving as mental health
social workers and first responders of incidents involving a violent psychotic
episode. Many of these events are entirely preventable. For more info click here:
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| Published with permission from Rep. Andy Barr's office |
At the meeting on Tuesday, central Kentucky families shared the
importance of passing this bill and what parts we personally identified with.
One Mother showed a photo of her young daughter when she was healthy before she
developed symptoms of schizophrenia. Due to the lack of access to treatment and
the barriers that HR 3717 addresses, her daughter has gone primarily without
treatment for 10 years! Consequently her daughter has suffered with irreparable brain damage.
Another Mother showed a stack of files illustrating the
years of effort she had endured trying to gain treatment for her son before tragedy.
Sadly her son died earlier this year.
Another Mother from Winchester KY, mentioned her son had been
homeless for years and how she was unable to help him obtain treatment due to the
broken mental health system! Her biggest fear he will freeze to death on the streets in the winter.
We all found Congressman Barr to be compassionate and genuinely
sincere in listening to our concerns. With his help, I know we’ll eventually
pass a compressive bill to stop the inhumane treatment of the most seriously
mental ill who are suffering unnecessarily with treatable brain diseases. As we left, Congressman Barr asked how he could help and pledged to
speak to the other Kentucky Representatives who have not yet agreed to co-sponsored
this important ACT in congress!
NAMI teaches us to never give up hope,
H.R. 3717 is our HOPE! ~ GG Burns
Show in photo is from L-R around the table:
1.) Joann Strunk, Mother of a daughter with schizophrenia; See her story here:
2.) GG Burns, NAMI volunteer, KY Advocate and Co-founder of
suffer from serious mental illness in the U.S.
4.) Donnie Colliver, NAMI LEX volunteer
5.) Carolyn Colliver, NAMI LEX volunteer
6.) Elizabeth Molands, NAMI Winchester volunteer
7.) Brenda Harrington, NAMI Winchester volunteer
8.) Faye Morton, NAMI volunteer and AOT
advocate, (see Faye's story/photo here.)
9.) Gloria Burd, NAMI LEX volunteer, Homeless advocate and and Mother of a daughter who died from complications of severe mental illness when she was only 25.
“This provision would be for people at the severe end of the spectrum who don’t come voluntarily to services and who might need court-ordered treatment,” says Sperling. “It’s a pilot AOT program for patients with severe mental illness. There are laws in 45 states that require such treatment, but many of those states don’t require AOT, which is for people who have failed to engage in treatment. This is not about putting people into institutions. It’s about mandatory treatment in the community.” Read more here: http://www.managedcaremag.com/archives/2014/9/mentally-ill-fall-through-net-insurers-asked-take-slack
