Wednesday, January 28, 2015

AOT bills move forward in other states

Yesterday, Laura's Law passed in San Diego county. A handfull of NAMI advocates made a difference! http://www.kpbs.org/news/2015/jan/26/san-diego-county-supervisors-consider-involuntary-/

 NAMI Washington's call for action for SB 5649.

Read more here:


Read more here:



Joel's Law … And AOT law in WA could save lives!

Read more here:


(Feb. 4, 2015) Yesterday, the Contra Costa County Board of Supervisors voted 5-0 to implement Laura’s Law, making it the eighth county in California to embrace assisted outpatient treatment as a tool for making treatment possible for individuals with severe mental illness. 
laurawilcox“We believe it’s an investment in helping families and people with serious mental illnesses,” Contra Costa County Supervisor John Gioia said in a statement. “We’ve heard from many families (who want) an opportunity to help their own family members.”

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Laura's Law passes easily in S.F. supervisors' vote

Easy passage belies the years of debate on implementation of state measure

Updated 7:10 am, Wednesday, July 9, 2014

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Monday, January 19, 2015

Liza Long - "Mental illness is not a choice. But hope is."

Powerful words written today by The Anarchist Soccer Mom and author of The Price of Silence: A Mom's Perspective on Mental Illness  


All across the US, we are at a loss for words, as we share the sad news of our friend and Tb4T advocate Laura Pogliano's son tragic passing. Liza has helped us find the right words. WORDS do matter. Many times wishful thinking to decrease stigma, actually discrimaintes against those who need help the most.


‪#‎worldmournszac‬ 
My heart hurts today. My friend Laura Pogliano has lost her 22-year old son Zac, who had paranoid schizophrenia. Both Laura and Zac were tireless and passionate advocates for ending the stigma of mental illness. Their story was featured in USA Today's "Cost of Not Caring" series, where Laura described herself as a "fortunate" mother--fortunate because despite personal bankruptcy, she had been able to obtain treatment that seemed to be working for her son. This tragic turn reminds all of us mothers just how fragile life is for our children who have serious mental illness. As a parent of a child with bipolar disorder, my worst nightmare is what happened to Laura and her son.

There's a popular quote floating around mental health advocacy circles: "Mental illness is not a choice. But recovery is." I know people will disagree with me, but today, I'm tired of that sentiment, and I wish we would retire the word "recovery." When local and national mental health policy is shaped by high-functioning consumers who have been able to manage their illnesses rather than by the sickest patients and their families, it's the equivalent of only allowing stage 1 cancer survivors to drive the narrative and take most of the funds. While their courage is admirable and their struggles are genuine, too often, we lose sight of those who are suffering the most. They become invisible to us, marginalized on the streets or in prison. Or they die young, like Zac.

I wish we would stop talking about recovery and replace it with a more useful, less stigmatizing word: hope.





Here are five reasons I wish we would stop using the word "recovery" for serious mental illness. 






Read Liza's 5 reasons here: 

http://anarchistsoccermom.blogspot.com/2015/01/5-reasons-i-wish-we-would-stop-talking.html?m=1


Sunday, January 4, 2015

Behind the Gates of Gomorrah: An Insane Situation - interview by Julia Robb

A new book was recently published by Dr. Stephen Seager. Below are a few of my favorite quotes from an interview with Julia Robb.
"Here’s some figures: 1% of the population everywhere on earth is schizophrenic so in the US that’s 3.25 million people of which maybe 1 million or so are paranoid.
There are 50,000 state hospital beds nationally.
The real question is why aren’t they in mandatory out patient treatment?
When I said that people don’t care about the mentally ill, I wasn’t kidding. The reason foreign doctors are over represented at state mental hospitals is because most American doctors won’t do it. It’s the same reason inner city clinics are populated by international physicians as well.
 Americans don’t care about the mentally ill, so we have out-sourced their care."

Read the entire interview here: http://juliarobb.com/author/julia/

Thursday, January 1, 2015

"Shot in the Head”, by Katherine Dering - Brutally honest, can't-put-it-down-kind-of-book

By G.G. Burns, Book Review


I just finished an incredible book, "Shot in the Head”, by Katherine Dering about the Flannery family and the life and death of their dear brother Paul. Paul is blindsided by the onset of Schizophrenia in his late teens and like other families the disease impacts the entire family unit.  

Katherine does as excellent job describing the devastation we feel with raw emotion that puts the reader in the shoes of Paul as he is "institutionalize", then later released to a world of insanity much worse than his disease. 
"While picking up the pieces after Paul's Mother died, Katherine (and her eight siblings) learned how dysfunctional and fragmented the "mental health system" is. Along the way, her perception of her ill brother, Paul, changed as well."
Over the past 10 years, I have read dozens of books about “living” with serious mental illness, some by psychiatrists or psychologists, others by research scientist, family members or individuals impacted themselves. In all the books describing tragic deaths or suicides, none touched me in the way "Shot in the Head" did.

Perhaps it was because I had just left my fagile 84-year old Mother, who like Paul in his final days suffered with cancer in a nursing home. 

My Mother suffers not only with dementia, depression and social anxiety that has paralyzed her much like horrible neurological disorder, but she has also survived breast cancer this year. For years, she lived in fear of "what if a bad thing happens" and now it has. Just as Paul believed he was James Bond or he had been shot in the head. 

Another reason this book was so impactful, my son is surviving his serious brain disease with "no treatment" due to his civil rights to say no! Like Paul, he too believes he works for the FBI. 

I began reading the book on my flight home from Washington, D.C., in early September after attending the national NAMI conference, where I was delighted to meet both of Paul’s sisters, Katherine and Ilene. I believe our paths have crossed over the years for a positive reason, as I know Paul’s story will help mental health policy to change one day.

"Shot in the Head" also allowed me to develop humanity for those dying a slow painful death with “mental illness” and how at times we need hospice care, just as dying slowing with cancer. It brought me to tears and laughter   sometimes on the same page.

As soon as I read the last page, I wrote a note to Paul’s sisters on my iphone as my husband and I traveled north to Kentucky on I-75. My first message: “Thank you for writing your eloquently written memoir and for sharing Paul’s story.” My second message: “Thank you for inspiring me (and hopefully others) to write about the challenges we face."

The writing of Paul’s story inspires me to attempt the unthinkable  to write a book about my son because his right to deny treatment trumps his health. It will be a story of anosogosia or lack of insight of ones own illness is definitely not something one can easily find on a shelf or online.

Bravo to Katherine and Ilene for their efforts to help families like ours by creating Paul’s Legacy Project and for writing, "Shot in the Head"

It is a must read.