Laws surrounding mental illness make it harder for victims to get treatment
Sad but true -- many families are dealing with similar nightmares! Few are able to speak out so well as this Maryland Mother. Many of us are faced with dozens of barriers each day -- but the laws themselves are the most troubling. When we advocate for solutions, we are bombarded with debris from clueless, civil libertarians!
Wednesday, October 30, 2013
Sunday, October 6, 2013
Kentucky makes national and world news as housing the mentally ill in prisons!
Business Insider Australia International and the Wall Street Journal have both recently published a staggering report about Kentucky jails and how Kentucky treats our most vulnerable and seriously mentally ill! Read it here:
http://www.businessinsider.com.au/jenn-ackerman-pictures-of-the-mentally-ill-in-prison-2013-10#this-inmate-whos-also-in-his-cell-for-23-hours-a-day-talks-to-himself-the-aclu-has-found-that-prolonged-isolation-can-exacerbate-mental-illness-4
My question is ... why are Kentucky funds used to warehouse the most seriously mentally ill in prisons ... or worse they are surviving in the streets of Louisville and Lexington?
On July 20, 2010, I posted Jenn Ackerman's award winning documentary about how individuals with severe mental illness are "trapped" in Kentucky's prison system, because I learned that no Kentucky media outlet had ever released it.
I asked why?
Are the media outlets paid off?
In fact, Jenn's report was one of the main reasons I created this Blog. Three years later, this Blog receives over 2000 hits a month and the primary reason is people are searching for information on how to help people who are mentally ill in jail in Kentucky.
I realized Kentucky media outlets rarely shared the real story of preventable tragedies -- often leaving out the criminal of a violent act was more often a victim of Kentucky's failed mental health system.
Each day, I read of horrific murders and domestic violence reports where individuals have shot or stabbed their family members -- and often commit suicide themselves. (In fact, I learned of two traumatic events just this weekend in nearby counties.) Many times, I receive a tip from horrified families where they have learned the person who committed the crime had just been released from a state psychiatric hospital with no follow-up care -- or perhaps worse, they were denied treatment at a state hospital! Many suffered with 'untreated' mental illness for years before they finally kill themselves or others.
This is yet another reason why I lobby for better and more humane outpatient treatment laws and the primary reason this Blog was founded!
The report from the Austria International report is extremely stigmatizing with a huge headline that reads ...
For more information visit Jenn's website at: www.jennackerman.com
http://www.businessinsider.com.au/jenn-ackerman-pictures-of-the-mentally-ill-in-prison-2013-10#this-inmate-whos-also-in-his-cell-for-23-hours-a-day-talks-to-himself-the-aclu-has-found-that-prolonged-isolation-can-exacerbate-mental-illness-4
My question is ... why are Kentucky funds used to warehouse the most seriously mentally ill in prisons ... or worse they are surviving in the streets of Louisville and Lexington?
On July 20, 2010, I posted Jenn Ackerman's award winning documentary about how individuals with severe mental illness are "trapped" in Kentucky's prison system, because I learned that no Kentucky media outlet had ever released it.
I asked why?
Are the media outlets paid off?
In fact, Jenn's report was one of the main reasons I created this Blog. Three years later, this Blog receives over 2000 hits a month and the primary reason is people are searching for information on how to help people who are mentally ill in jail in Kentucky.
I realized Kentucky media outlets rarely shared the real story of preventable tragedies -- often leaving out the criminal of a violent act was more often a victim of Kentucky's failed mental health system.
Each day, I read of horrific murders and domestic violence reports where individuals have shot or stabbed their family members -- and often commit suicide themselves. (In fact, I learned of two traumatic events just this weekend in nearby counties.) Many times, I receive a tip from horrified families where they have learned the person who committed the crime had just been released from a state psychiatric hospital with no follow-up care -- or perhaps worse, they were denied treatment at a state hospital! Many suffered with 'untreated' mental illness for years before they finally kill themselves or others.
This is yet another reason why I lobby for better and more humane outpatient treatment laws and the primary reason this Blog was founded!
The report from the Austria International report is extremely stigmatizing with a huge headline that reads ...
13 Haunting Pictures Of Insane Prisoners In Kentucky The Wall Street Journal had a staggering report recently that showed just how many crazy people America keeps in its jails instead of mental hospitals aimed at helping them get better.
They go on to report, "America’s three biggest jail systems — New York City, Los Angeles, and Cook County in Illinois — have 11,000 inmates being treated for mental illness. By comparison, the WSJ reported, the three largest state-run mental hospitals in the U.S. have only 4,000 beds.
"Minneapolis-based photographer Jenn Ackerman got permission to photograph the Kentucky State Reformatory‘s psychiatric unit in 2008, after reading an article about the mentally ill prison. It was not easy for Ackerman to get this kind of access, and the photos she took are absolutely haunting. We are running them with her permission.
For more information visit Jenn's website at: www.jennackerman.com
Please share this with your Kentucky state legislators and national congressman.
Ask them why this inhumane treatment for our most vulnerable individuals continues, as it has been going on for decades!
20 years ago, Treatment Advocacy Center founder Dr. E. Fuller Torrey gave Kentucky an award for the "worse state in the nation" on housing the mentally ill in prisons.
Please learn how "assisted outpatient treatment" standards could help stop this insanity!
Friday, October 4, 2013
A success story -- in time, (NOT 60 days) AOT can help a person find the bridge to recovery!
My Daughter’s Treatment Success Story – personally speaking
(Oct. 4, 2013) I write the way I speak. The way I speak these days is with impatience at the hesitancy to implement or fully use involuntary treatment laws in every state.
I wasn't always this way. When my daughter had her second psychotic break, I went to our urgent psychiatric center to fill out the involuntary petition and found myself sitting in the chair unable to speak or write due to crying uncontrollably at the thought that I was there quite literally begging for my 19 year old to get the medical care she desperately needed.
And beg I would. I would have done anything. But they accepted that petition and the other three I have had to fill out during the course of her now almost 10-year battle with serious mental illness.
Getting the care she needed still didn't stop me from being curled up in the fetal position the third time we had to go through the same process worrying about how my precious girl was supposed to survive in a world that prefers to incarcerate her or leave her on the streets.
My daughter's illness included a lack of insight, which means she was too sick to know she was sick. I have never needed studies or medical expertise to explain to me that her illness affects her brain, therefore her ill brain may not allow her understand she is sick. Common sense told me that.
But due to the fact that she was allowed access via our involuntary program to the medical care she needed for almost eight years, her illness relented and she now has insight. For the last year and two months, she has been receiving care voluntarily.
I still worry though. She is still mentally ill. There are no guarantees the symptoms of her illness won't rear their ugly heads again. And she still lives in a world that would prefer to incarcerate her or leave her on the street.
But I am grateful she has made it this far. I no longer find myself curled up in a ball sobbing.
Now I'm just impatient waiting for everyone to have access to medical care, including those with brain disorders rendering them too sick to ask for it on their own.
- THE MOTHER OF A YOUNG WOMAN WHO BENEFITED FROM ARIZONA’S ASSISTED OUTPATIENT TREATMENT (AOT) LAW.
********************************
AOT FACTS:
Court-ordered outpatient treatment requires that individuals with severe mental illness adhere to a prescribed treatment plan as a condition of living in the community. One of the mains goals of outpatient treatment is to facilitate more consistent adherence to treatment for the people in whom severe mental illness impairs the ability to seek and voluntarily comply with treatment. This treatment typically combines a court order and a comprehensive treatment and services plan. When implemented, the court order requires the individual patient to follow his or her treatment plan. The court's role and the legal procedures related to outpatient commitment laws vary from state to state. Typically, the court commits the patient to the treatment system. Just as important, it commits the treatment system to the patient.
The Department of Justice in 2012 certified assisted outpatient treatment as an evidence-based practice for reducing crime and violence. A study in New York documented that, among AOT recipients:
- 77 percent fewer experienced hospitalizations compared to before participation.
- 74 percent fewer experienced homelessness compared to before participation
- 83 percent fewer experienced arrests compared to before participation
- 88 percent fewer experienced incarceration compared to before participation
Tuesday, October 1, 2013
The Tipping Point for Mental Illness -- in a Mother's Voice
The tipping point for mental illness
By COURTNEY PERKES / ORANGE COUNTY REGISTER
Mary is a fellow "mom advocate" in California. Read her entire story here: The tipping point for mental illness
Recopied with appreciation from:
By COURTNEY PERKES / ORANGE COUNTY REGISTER
"What happened to my son was predictable and preventable," she said. "I've always said a mother's love is going to change this. I have prayed all the time that goodness would come out of my son's story."
"If my son had autism I could advocate for him and get services," said Palafox, a nurse. "If my mother had Alzheimer's I could advocate and get services for her. I had to wait for him to deteriorate to the point that I could legally take his rights away in conservatorship and that occurred only after the charges." - Mary Palafox
Mary is a fellow "mom advocate" in California. Read her entire story here: The tipping point for mental illness
It's time to change Tennessee's mental health laws!
Thursday, September 19, 2013
NEWS UPDATE!! Rep. Tim Murphy Announces Important Mental Health Legislation
Bravo -- BIG NEWS from Congressman Tim Murphy, who is willing to stand up for what is needed. The US can spend billions on space travel and fighting wars in other countries ... but we can't seem to figure out how to help "our nation's" more vulnerable citizens. IT IS TIME. gg burns
read review by Mental Illness Policy.org here:
Mental Illness Policy Org: Rep. Tim Murphy Announces Important Mental Health Legislation
IN THE NEWS: HOUSE MEMBER OUTLINES MENTAL HEALTH PROPOSALS, CITING NAVY YARD SHOOTING
9/19/13By Melissa Attias
Sept. 19, 2013
A key House leader on mental health announced Thursday that he will be introducing legislation soon to boost treatment options and address other challenges, noting that Monday’s deadly shooting again “raised the issues of how we are handling mental health to stop this terrible violence.”
Pennsylvania Republican Tim Murphy, chairman of the Energy and Commerce Oversight Subcommittee, outlined the package in a floor speech, noting that the gunman who killed a dozen people at the Washington Navy Yard had a history of mental health issues. Murphy’s panel has been examining current mental health policies since the start of the 113th Congress, convening a forum and hearings earlier this year.
“The background checks does not even begin to deal with the millions of people who have a psychiatric illness and go untreated,” Murphy said. “There is a lack of inpatient and outpatient treatment options and we need to begin, finally, to deal with these problems.”
The proposal, expected to be introduced in a couple of weeks, appears to offer a different approach to mental health than the legislation (S 689) that was approved by the Senate Health, Education, Labor and Pensions Committee and incorporated into a gun control package (S 649) by a vote of 95-2. Murphy expressed skepticism of that bill earlier this year, maintaining that the effectiveness of the programs proposed in the measure is unknown.
Murphy said his bill will increase the options available for individuals who need inpatient and outpatient treatment. He said that psychiatric beds have decreased from 500,000 in 1955 to less than 40,000.
Read more here: http://murphy.house.gov/latest-news/in-the-news-house-member-outlines-mental-health-proposals-citing-navy-yard-shooting/
It is time for the public to say, NO MORE ...
This sickens me to comment on yet another preventable tragedy. Yet, if a person called the police in your city and said "I am hearing voices and someone is sending vibrations to me via a microwave machine" ... what would the police do? Would they just walk away making 'crazy jokes' as they left? Or would they call for a medical professional to come evaluate the person to see if perhaps they could take him to a "hospital".
They would if he was having a heart attack!
When are we going to learn that a break in the brain, is no different than a malfunction of the heart? And what if the person experiencing acute psychosis was afraid or was too paranoid to go for help, 'even' if it was offered? What would happen if this took place in Lexington, KY today? What if you go to work tomorrow and a person having a psychiatric break -- was not treated as a medial emergency? What if he or she found he or herself a gun? It is time for the average tax paying citizen to call their legislators and congressman or women -- to demand state and federal change!
It is time for the public to say, NO MORE ...
~ GG Burns, Mother, advocate for "treatment before tragedy"
Mass Killing at Navy Yard Could Have Been Prevented
Aaron Alexis a “classic example” of what 50 years of failed mental illness treatment policy have produced, according to the Treatment Advocacy Center.
Mass shooter Aaron Alexis


Arlington, Virginia (PRWEB) September 18, 2013
Shot by a man whose hallucinations were so serious he called police in terror barely a month ago, the 12 people killed last Monday at the Navy Yard in Washington are the latest victims of America’s failed mental health policies and civil commitment laws that need to be improved, the Treatment Advocacy Center said Tuesday.
“This is a classic example of the failure of our mental health system – and the price we all pay for that failure,” said Doris A. Fuller, Treatment Advocacy Center executive director. “Aaron Alexis was clearly suffering an acute psychiatric crisis. He was like a man in the grip of a terrible heart attack. But because of our dysfunctional approach to mental illness treatment and weak civil commitment laws in the state where he was deteriorating, he wasn't treated like the victim of a severe medical emergency. Now, 13 people including Alexis are dead, eight more are injured, and the lives of innumerable others are forever changed.”
Failed Federal Policies
Passage of the Community Mental Health Act of 1963 and the resulting wholesale closure of public psychiatric hospitals decimated the inpatient system that once provided care for the most acutely and chronically mentally ill individuals. Today, the nation has 5% the number of public beds it had in the late 1950s, and untreated mental illness is a factor in an estimated 50% of rampage killings and 10% of all homicides, Fuller said. It is also a major contributor to homelessness, jail and prison overcrowding,
victimization of individuals with mental illness and suicide.
victimization of individuals with mental illness and suicide.
“Research shows that individuals receiving effective mental illness treatment are no more likely to
commit violent acts than the general public,” she said, “but the system for providing timely and
effective treatment to those most at risk for violence has been dismantled and nothing has replaced it.”
commit violent acts than the general public,” she said, “but the system for providing timely and
effective treatment to those most at risk for violence has been dismantled and nothing has replaced it.”
Weak State Civil Commitment Laws
At the same time, we were emptying the nation’s psychiatric hospitals, civil commitment became
increasingly limited to individuals demonstrating an imminent danger to themselves or others,
the executive said.
increasingly limited to individuals demonstrating an imminent danger to themselves or others,
the executive said.
Rhode Island provides a case in point.
Just over a month ago, Newport, Rhode Island, police responded to a call from shooter Aaron
Alexis’s hotel room, where he told officers he was being followed by someone who “had sent
three people to follow him and to keep him awake by talking to him and sending vibrations to
his body” via a microwave machine. Alexis, 34, moved to three different hotels in a single night t
o elude the voices and the people he believed were sending the vibrations, according to a police
report provided to the media.
Alexis’s hotel room, where he told officers he was being followed by someone who “had sent
three people to follow him and to keep him awake by talking to him and sending vibrations to
his body” via a microwave machine. Alexis, 34, moved to three different hotels in a single night t
o elude the voices and the people he believed were sending the vibrations, according to a police
report provided to the media.
The responding officers told Alexis to stay away from the individuals he thought were following
him and concluded, “No further action was required.”
him and concluded, “No further action was required.”
“Under the laws of some states, Alexis could have been taken to a hospital for emergency
evaluation,” said Fuller, “but in the absence of violent or suicidal acts or threats, it appears
he was not considered committable in Rhode Island,” which requires that an individual with
mental illness demonstrate “likelihood of serious harm” to qualify for involuntary treatment.
evaluation,” said Fuller, “but in the absence of violent or suicidal acts or threats, it appears
he was not considered committable in Rhode Island,” which requires that an individual with
mental illness demonstrate “likelihood of serious harm” to qualify for involuntary treatment.
The Treatment Advocacy Center is a national nonprofit organization dedicated to eliminating
barriers to the timely and effective treatment of severe mental illnesses. The nonprofit promotes
laws, policies and practices for the delivery of psychiatric care and supports the development
of innovative treatments for and research into the causes of severe and persistent psychiatric
illnesses, such as schizophrenia and bipolar disorder.
barriers to the timely and effective treatment of severe mental illnesses. The nonprofit promotes
laws, policies and practices for the delivery of psychiatric care and supports the development
of innovative treatments for and research into the causes of severe and persistent psychiatric
illnesses, such as schizophrenia and bipolar disorder.
The organization does not accept money from pharmaceutical companies. The American
Psychiatric Association awarded the Treatment Advocacy Center its 2006 presidential
commendation for "sustained extraordinary advocacy on behalf of the most vulnerable
mentally ill patients who lack the insight to seek and continue effective care and benefit
from assisted outpatient treatment.”
Psychiatric Association awarded the Treatment Advocacy Center its 2006 presidential
commendation for "sustained extraordinary advocacy on behalf of the most vulnerable
mentally ill patients who lack the insight to seek and continue effective care and benefit
from assisted outpatient treatment.”
Thursday, August 22, 2013
Suggestions on how Kentucky can improve their AOT law
NAMI-Kentucky State Conference Louisville, KY
"The Untapped Power of AOT"
July 20, 2013
By: Brian Stettin, Policy Director
Treatment Advocacy Center
The Consequences
of Non-Adherence:
Budgetary Impact
n Lawenforcement,incarceration,and hospitalization are enormously expensive.
n Patientscaughtintherevolvingdoor are stressing the CJ & MH systems beyond the breaking point.
n Lawenforcement,incarceration,and hospitalization are enormously expensive.
n Patientscaughtintherevolvingdoor are stressing the CJ & MH systems beyond the breaking point.
Constitutionality Upheld
“The restriction on a patient's freedom affected by a court order authorizing assisted outpatient treatment is minimal, inasmuch as the coercive force of the order lies solely in the compulsion generally felt by law-abiding citizens to comply with court directives.”
Matter of K.L., 1 N.Y.3d 362 (2004)
Linking Anosognosia and Non-Adherence
Psych. Services 2/06:
• Of300patientswithnon-adherence tracked, 32% found to lack insight.
• Those32%hadsignificantlylonger non-adherent episodes, more likely to completely cease meds, have severe symptoms, be hospitalized
Lessons from the Field
AOT works
Fears of negative consequences are unfounded
Court order matters
Length of AOT period impacts sustainability of gains
Patient engagement is critical
AOT Works:Harmful Behaviors
2005 NYS-OMH study compared 1st 6 mos. under AOT to 6 mos. prior:
55% fewer recipients engaged in suicide attempts or physical harm to self;
49% fewer abused alcohol;
48% fewer abused drugs;
47% fewer physically harmed others;
46% fewer damaged or destroyed property; and
43% fewer threatened physical harm to others
AOT Works:Arrest and Hospitalization
2009 NY study results (Duke et. al.):
Likelihood of arrest over 1-month period cut in half (3.7% to 1.9%)
Likelihood of hospital admission over 6-month period cut in half (74% to 36%)
“Substantial reductions” in hosp days (most expensive form of treatment)
44% decrease in harmful behaviors
Fears of AOT are Unfounded
AOT recipients no more likely to feel coerced by mental health system
AOT recipients report no greater sense of stigma
Impact on quality of voluntary services was POSITIVE
The Court Order Matters
Comparison of AOT patients to AOT-eligible “voluntaries,” with equal quality of services, found:
“Highly statistically significant” difference in the likelihood of a hospital admission over six months (36% vs. 58%).
AOT patients less likely to be arrested than “voluntaries” (1.9% per month vs. 2.8%)
AOT patients had a substantially higher level of personal engagement in their treatment (55% “good” or “excellent” vs. 43 percent).
AOT in Kentucky??
Implied in the KY INPATIENT commitment standard:
• 202A.026: Invol hosp requires finding:
Mental illness
Danger (or threat thereof)
Can “reasonably benefit from tx”
Hospital is “least restrictive alternative mode of treatment presently available.”
AOT in KY: Limitation #1
AOT only available to person who meets the first 3 criteria for INPATIENT commitment, including current danger.
“substantial physical harm or threat of substantial physical harm upon self, family, or others[.]” § 202A.011(2)
AOT in KY: Still More Limitations! (§ 202A.081)
Tiny window of availability (“Following prelim hearing but prior to completion of final hearing”)
Super-short period of AOT ... (60 days, renewable 1x for 60 more)
No consequence for non-adherence
2013 HB78 (Burch) / SB33 (Denton)
“Following the prelim hearing but prior to the completion of the final hearing”
Increases max length of INITIAL AOT (not renewal) from 60 to 180 days
Non-adherence “may result in invol hosp, provided the criteria set forth in this chapter are met.”
Providers “shall use evidence-based practices.”
A Better KY Bill in 2014?
Establish AOT eligibility criteria distinct from inpatient criteria, so person need not be presently dangerous.
Separate AOT and inpatient processes
1 year order period, always renewable
Non-adherence as presumptive grounds for need for evaluation
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NAMI KY presented the 'Legislator of the Year Award' to Rep Tom Burch and Sen Julie Denton |
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